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    Can social media reduce discrimination and ignorance towards patients with long term conditions? A chronic kidney disease example in the UK and more widely

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    Open Access article (446.9Kb)
    URI
    http://hdl.handle.net/11287/609050
    Author
    Muhammad, Shahid N.
    Zahra, A. J.
    Leicester, H. J.
    Davis, H.
    Date
    2016-05
    Journal
    Patient Experience Journal
    Type
    Journal Article
    Publisher
    Patient Experience Journal
    Rights
    Archived with thanks to the Patient Experience Journal. This Article is brought to you for free and open access by Patient Experience Journal. It has been accepted for inclusion in Patient Experience Journal by an authorized administrator of Patient Experience Journal.
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    Abstract
    Long Term Conditions (LTCs) are increasing in prevalence and cost in Western healthcare. Patients with such conditions are often classed as “disabled”, because of impacts of self-care on “activities of daily life” or secondary consequences of conditions (impairments) affecting factors such as mobility, concentration and communications. Disability needs are often ignored in the design of services and treatment of individuals. It manifests as services which some find difficult to use and lack of personal respect (discrimination) often based on lack of understanding by the healthcare profession itself (ignorance). This paper explores how Social Media (SM), an example “Assistive Technology” in an increasingly digital age, might help. The focus is Chronic Kidney Disease with two, specific illustrations in the UK beginning to spread worldwide. Support mechanisms now emerging may go well beyond healthcare, and even beyond kidney problems. They may also find additional assistance via the new, English Accessible Information Standard.
    Citation
    Can social media reduce discrimination and ignorance towards patients with long term conditions? A chronic kidney disease example in the UK and more widely. Patient Experience Journal Vol.3(1), pp35-41, 2016.
    Publisher URL
    http://pxjournal.org/journal/vol3/iss1/6
    Note
    This article is freely available via Open Access. Click on the 'Additional Link' above to access the full-text via the publisher's site.
    Collections
    • 2016 RD&E publications
    • Exeter Kidney Unit (Renal)
    • Renal Patient Support Group (RPSG)

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