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    Health outcomes for children with neurodisability: what do professionals regard as primary targets?

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    URI
    http://hdl.handle.net/11287/593845
    Author
    Janssens, A.
    Williams, J.
    Tomlinson, Richard
    Logan, Stuart
    Morris, Christopher
    Date
    2014-10-01
    Journal
    Archives of disease in childhood
    Type
    Journal Article
    Research Support, Non-U.S. Gov't
    Publisher
    BMJ
    DOI
    10.1136/archdischild-2013-305803
    Metadata
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    Abstract
    AIM: To identify what aspects of health clinicians target when working with children with neurodisability, and which might be appropriate to assess the performance of health services. METHOD: Health professionals were recruited through child development teams and professional societies in England. Professionals participated in four rounds of an online Delphi survey. Open questions were used to elicit aspects of health; these were coded using the WHO International Classification of Functioning, Disability and Health for Children and Youth. Then, participants were asked to rate their agreement with statements to prioritise outcomes identified. RESULTS: Responses to all four rounds were, respectively: 233/276 (84.4%), 232/286 (81.1%), 227/285 (79.6%) and 191/284 (67.3%). The key outcome domains identified were: mental health, confidence/emotional stability, anxiety/attention, sleep, pain, toileting, movement ability, manual ability, acquiring skills, communication, mobility, self-care, recreation and leisure. Participants rated both functioning and well-being in these aspects of health as equally important. INTERPRETATION: This Delphi survey identified nine key domains that provide a professional perspective on a core set of outcomes for evaluating services for children and young people with neurodisability.
    Citation
    Arch Dis Child. 2014 Oct;99(10):927-32.
    Publisher URL
    http://adc.bmj.com/cgi/pmidlookup?view=long&pmid=24854564
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    RD&E staff can access the full-text of this article by clicking on the 'Additional Link' above and logging in with NHS OpenAthens if prompted.
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    • 2014 RD&E publications
    • Honorary contracts publications
    • Paediatrics

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