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    Communicating with disabled children when inpatients: barriers and facilitators identified by parents and professionals in a qualitative study

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    URI
    http://hdl.handle.net/11287/593815
    Author
    Sharkey, S.
    Lloyd, C.
    Tomlinson, Richard
    Thomas, Eleanor
    Martin, Alastair
    Logan, Stuart
    Morris, Christopher
    Date
    2014-08-24
    Journal
    Health expectations : an international journal of public participation in health care and health policy
    Type
    Journal Article
    Publisher
    Wiley
    DOI
    10.1111/hex.12254
    Metadata
    Show full item record
    Abstract
    BACKGROUND: Communication is a fundamental part of health care, but can be more difficult with disabled children. Disabled children are more frequently admitted to hospital than other children. AIMS: To explore experiences of ward staff and families to identify barriers and facilitators to effective communication with disabled children whilst inpatients. DESIGN: This was an exploratory qualitative study. METHODS: We consulted 25 staff working on paediatric wards and 15 parents of disabled children recently admitted to those wards. We had difficulty in recruiting children and evaluating their experiences. Data were collected through interviews and focus groups. A thematic analysis of the data supported by the Framework Approach was used to explore experiences and views about communication. Emerging themes were subsequently synthesised to identify barriers and facilitators to good communication. RESULTS: Barriers to communication included time, professionals not prioritising communication in their role and poor information sharing between parents and professionals. Facilitators included professionals building rapport with a child, good relationships between professionals and parents, professionals having a family-centred approach, and the use of communication aids. CONCLUSIONS: Communication with disabled children on the ward was perceived as less than optimal. Parents are instrumental in the communication between their children and professionals. Although aware of the importance of communication with disabled children, staff perceived time pressures and lack of priority given to communicating directly with the child as major barriers.
    Citation
    Health Expect. 2016 Jun;19(3):738-50
    Publisher URL
    http://dx.doi.org/10.1111/hex.12254
    Collections
    • 2014 RD&E publications
    • Anaesthetics
    • Honorary contracts publications
    • Paediatrics

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