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Promotion of exercise in the management of cystic fibrosis - summary of national meetings

Tomlinson, O. W.; Shelley, J.; Denford, S.; Barker, A. R.; Oades, Patrick; Williams, C. (European Society of Person Centered Healthcare, 2017)
Measurement of VO2max in clinical groups is feasible and necessary

Williams, C. A.; Saynor, Z.; Barker, A. R.; Oades, Patrick; Tomlinson, O. W. (American Physiological Society, 2017)
The oxygen uptake efficiency slope is not a valid surrogate of aerobic fitness in children with cystic fibrosis

Williams, C.; Tomlinson, O. W.; Chubbock, L. V.; Saynor, Z.; Oades, Patrick; Barker, A. R. (Wiley, 2017-10-24)
Psychosocial interventions for recurrent abdominal pain in childhood

Martin, Alice E.; Newlove-Delgado, T.V.; Abbott, R. A.; Bethel, A.; Thompson-Coon, J.; Nikolaou, V.; Logan, Stuart (Wiley, 2017-01-10)
This review supersedes the original Cochrane review first published in 2008 (Huertas-Ceballos 2008).Between 4% and 25% of school-aged children complain of recurrent abdominal pain (RAP) severe enough to interfere with their ...
Pharmacological interventions for recurrent abdominal pain in childhood.

Martin, Alice E.; Newlove-Delgado, T. V.; Abbott, R. A.; Bethel, A.; Thompson-Coon, J.; Whear, R.; Logan, Stuart (Wiley, 2017-03-06)
Between 4% and 25% of school-aged children at some stage complain of recurrent abdominal pain (RAP) of sufficient severity to interfere with their daily lives. When no clear organic cause is found, the children are managed ...
Management of paediatric hernia.

Bowling, K.; Hart, Natasha; Cox, P.; Srinivas, G. (BMJ, 2017-10-19)
Dietary interventions for recurrent abdominal pain in childhood

Martin, A. E.; Newlove-Delgado, T.V.; Abbott, R. A.; Bethel, A.; Thompson-Coon, J.; Nikolaou, V.; Logan, Stuart (Cochrane Library, 2014-02-14)
This is the protocol for a review and there is no abstract. The objectives are as follows: To examine the effectiveness of dietary interventions for RAP in children of school age.
Psychosocial Care for Injured Children: Worldwide Survey among Hospital Emergency Department Staff.

Alisic, E; Hoysted, C; Kassam-Adams, N; Landolt, M A; Curtis, S; Kharbanda, A B; Lyttle, M D; Parri, N; Stanley, R; Babl, F E; Pediatric Emergency Research in the UK & Ireland (PERUKI); Reuben, Adam (Elsevier, 2015-12-17)
To examine emergency department (ED) staff's knowledge of traumatic stress in children, attitudes toward providing psychosocial care, and confidence in doing so, and also to examine differences in these outcomes according ...
Measurement properties of multidimensional patient-reported outcome measures in neurodisability: a systematic review of evaluation studies.

Janssens, A.; Rogers, M.; Gumm, Rebecca; Jenkinson, C.; Tennant, A.; Logan, Stuart; Morris, Christopher (Wiley, 2015-12-11)
To identify and appraise the quality of studies that primarily assessed the measurement properties of English language versions of multidimensional patient-reported outcome measures (PROMs) when evaluated with children ...
Characterization of human disease phenotypes associated with mutations in TREX1, RNASEH2A, RNASEH2B, RNASEH2C, SAMHD1, ADAR, and IFIH1.

Crow, Y. J.; Chase, D. S.; Lowenstein Schmidt, J.; Szynkiewicz, M.; Forte, G. M. A.; Gornall, H. L.; Oojageer, A.; Anderson, B.; Pizzino, A.; Helman, G.; Abdel-Hamid, M. S.; Devriendt, K.; Di Rocco, M.; Fahey, M. C.; Fazzi, E.; Lim, M. J.; Ferrie, C. D.; Khan, N.; Gowrinathan, N. R.; McKee, S. A.; Gowrishankar, K.; Oades, Patrick; Hanrahan, D.; King, M. D.; Kirk, E. P.; Kumar, R.; Ramesh, V.; Lin, J.-P. S-M; Lagae, L.; Landrieu, P.; Lauffer, H.; Laugel, V.; Olivieri, I.; Roubertie, A.; Moroni, I.; Linnankivi, T.; Rasmussen, M.; Mackay, M. T.; Marom, D. R.; Morton, J. E. V.; Salvatici, E.; Moutard, M.-L.; Tacke, U.; Ostergaard, J. R.; Murray, K.; Nabbout, R.; Nampoothiri, S.; Nunez-Enamorado, N.; Tonduti, D.; Régal, L.; Pérez-Dueñas, B.; Tan, T. Y.; Prendiville, J. S.; Segers, K. A.; Ricci, F.; Valente, E. M.; Rio, M.; Webb, H. J.; Rodriguez, D.; Sinha, G. P.; Soler, D.; Spiegel, R.; Livingston, J. H.; te Water Naude, J.; Stödberg, T. I.; Straussberg, R.; Swoboda, K. J.; Suri, M.; Whitehouse, W. P.; Abdel-Salam, G. M.; Van Coster, R. N.; Wee Teik, K.; Rozenberg, F.; Thomas, M. M.; Till, M.; van der Knaap, M. S.; Ackroyd, S.; Vassallo, G.; Bahi-Buisson, N.; Whitney, R. N.; Vijzelaar, R.; Vogt, J.; Wallace, G. B.; Wassmer, E.; Bernard, G.; Lebon, P.; Zaki, M. S.; Bailey, K. M.; Zuberi, S. M.; Aeby, A.; Vanderver, A.; Bianchi, M.; Orcesi, S.; Cereda, C.; Rice, G. I.; Agosta, G.; Albin, C.; Allon-Shalev, S.; Crichiutti, G.; Barnerias, C.; Arellano, M.; Ariaudo, G.; Aswani, V.; Babul-Hirji, R.; Chandler, K. E.; Baildam, E. M.; Billette de Villemeur, T.; Barth, M.; Dabydeen, L.; Battini, R.; Beresford, M. W.; Blair, E. M.; Bloom, M.; Burlina, A. B.; Figueiredo, A.; Chitayat, D. A.; Carpanelli, M. L.; Carvalho, D. R.; Castro-Gago, M.; Cavallini, A.; Isidor, B.; Dale, R. C.; Collins, A. E.; Gener, B.; Sierra Corcoles, C.; Cordeiro, N.J. V.; D'Arrigo, S.; Kara, B.; De Goede, C. G E L; La Piana, R.; De Laet, C.; De Waele, L.M. H.; Denzler, I.; Desguerre, I.; Marques Lourenço, C.; Goizet, C. (Wiley, 2015-02)
Aicardi-Goutières syndrome is an inflammatory disease occurring due to mutations in any of TREX1, RNASEH2A, RNASEH2B, RNASEH2C, SAMHD1, ADAR or IFIH1. We report on 374 patients from 299 families with mutations in these ...

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